Yes, it's come around one more time - May 12th, M.E. awareness day. This June will mark my 17th year ill - not sure if I should celebrate (I'm still here) or cry and scream?!
To all my fellow sufferers out there, kudos to you for enduring this horrible often invisible and dismissed illness. We are all clearly made of steal - by necessity.
Appropriately, I'm in a crash today. Hot and cold, dizzy, sore throat and lymph nodes and chest/breathing ache. Oh right - muscle weakness and fatigue. Also that indefinable icky achey fluey malaise. I wish there was some type of alarm that went off when I was over-doing to remind me not to. It seems that even if I was crashed only a day or two ago, as soon as I'm feeling a bit better/stronger, I completely overdo.
The last couple weeks have been tough. I came down with influenza!! of all things at the end of April, beginning of May. At first I just thought it was a terrible cold and I was being whiney, but then the fever hit. I'm doing better now (just a little coughing). Then on top of it all my dad has not been doing well, along with heart/breathing issues his memory problems and confusion have increased a lot. I'm over there multiple times a day dealing with something. I won't bore you with details.
Anyways, thanks for all who read my laments. Everything is not bad all the time. I have some nice things in my life, and puppy has gotten a lot easier lately. We have a new routine in the morning where I get to lay in bed much longer which has made a big difference.
Here is a good article in CNN! about Ron Davis and M.E. research: http://www.cnn.com/2019/05/12/health/stanford-geneticist-chronic-fatigue-syndrome-trnd/index.html?fbclid=IwAR2iG1tO1tACS_i5y0z0kDeTl6_OGTWb8PhfWRi-aste90--wII9lXArzE0
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