Today I read a guest blog entry on Cort's "Bringing the Heat" blog site (which is about M.E./CFS). The entry was written by a woman named Laurel who has M.E.
I thought she made some really good points in sharing her story. (Points that I should probably be taking to heart about what can happen when a person with M.E. pushes too hard). She writes about how people (even fellow M.E./CFSers) would rather hear about the stories of those who've recovered, not those who are severely ill or have gotten worse.
I have experienced this on a small scale when people ask how I am, when they only really want to hear that I'm doing "well" or "improving".....they don't want to hear if I've had a crash or if I'm having a really bad day.... Of course some people ARE sincere when they ask how I am, but there are others who would really rather not know unless the answer is positive and cheery.......
Here's the link:
http://aboutmecfs.org/blog/?p=769
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