Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Saturday, May 25, 2013

Being Chronically Ill Isn't a Character Flaw.

You know, quite often when I'm feeling ill, I start feeling bad about myself.  Originally, I looked for all the things I may have done 'wrong' to cause the illness.  Now instead it's when I crash, I look for all the things I may have done 'wrong' to crash.  Living in a society that often focuses the lens on individual behavior as the cause of illness vs. the larger environmental causes, it's hard not to tell ourselves that somehow we are to blame.

And it's not that we may or may not have made some poor choices for our health, but in reality, really wonderful people who are doing everything 'right' get chronic illnesses. And people who treat their bodies poorly can live long, healthy lives.

Any time I start feeling bad about myself as a person because I'm ill, I remind myself that I didn't choose this!!! I have no desire to be sick, feel miserable, and spend all but 2 or 3 hours of my day laying down!  No one would choose this.  We all had goals and dreams and want to live a full life.

And for the most part, I'm doing the best I can to be as healthy as I can.  I do indulge in some treats: I still drink an organic coffee or two each morning, and I love my dark chocolate.....but if something as small as this was at the root of my illness, I would have recovered by now (to be honest, over the years I have gone "off" just about every food or drink imaginable in order to regain my health).

Yesterday I over did it, so today I woke up feeling especially ill.  I could feel the self-blame creeping in.  "I am such a bad person for being sick, on disability, living off the government",  "if I was tougher I would do more", "I am unlikable because I am sick, that's why I have so few friends", "someone else who felt this sick and weak would still be tougher, do more, be better at coping".....

I try to squash these thoughts with self talk that is more positive...."you're doing the best you can",  "no one who felt this sick would be able to rally, look at the fact that more than 60% are fully disabled", "the reason you crash is because you DO try and you take on too much", "look at everything you manage despite being sick"

So that's my story today.  I have my folks coming for their annual visit and am getting some things ready. I am really excited to see them as my life has been pretty lonely lately.

My immune system has plummeted even more since the cold virus in April and I'm still dealing with sinusitis (viral), a yeast infection (my first), canker sores in my mouth and throat, and upset stomach.  I went to the clinic again and got some meds.  Hopefully removing at least  one layer of infection can help my poor immune system rally.  That, and the time I'm spending camped out on my chair in the sun.  Yay sun!

9 comments:

  1. I understand this so well, upnorth. I can listen to the voice of condemnation too...."something must be wrong with me........I must be to blame because Joel healed so quickly from prayer and I have not! I must be doing it wrong! Oh, yeah......We need that great self talk!

    Hope you have a good time with your parents. Loneliness stinks! Do you use probiotics? I have to take several a day when on antibiotics.
    Take care.......

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  2. I took so many probiotics when I was on the antibiotics and since have been double dosing so I was surpirsed to get that infection (although I'm guessing the antibiotics in combo with my immune system function played a role). I am still double dosing on the proB and eating lots of Yogurt. Thankfully the antifungal is taking effect already.

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  3. Upnorth, I agree that nobody chose to be like this! I had friends who tried to convince me that somehow I "chose" to be ill, somehow I liked to be sick, I was so sick of that kind of notions. I do admit I had lots of bad "hobbies" but I suppose we all make mistakes, and someone are just "luckier" that their mistakes were not so "fatal". I also accepted the fact that I was not "wise" when I was young, totally ignored my heart condition, totally ignored the importance of physical health. But I do not blame myself though, because I think I had reason to be that "stupid". So, after this middle age hazard, I totally "spoil" myself, taking care the physical side of my life like I've never done before. And I also realized how we humans praise our spirits, our mental powers, all in all, is just our naiveness, our exaggeration on our spiritual side of our lives, which make ourselves feel bigger than we actually are. all these so call mental strength, by my understanding, cannot have any strength without physical support. So my first, second and third priority are all my physical well being.
    I might sound extreme. But I just want to share what I think. Hope you have a good time with your folks.

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    1. upnorth, I just want to add, that I think we all are toughest persons. I did not realized until very recent years that my problem was not that I was not tough enough, but precisely the opposite: I was too tough. I had kept forcing myself to do whatever my body could not do. So I changed, though not easily, and I found since then I was on right path.
      I don't suppose that everyone is the same, but just sharing my experience in case it helps.

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    2. Yun Yi, sometimes I agree, we are just the toughest women to endure this day in day out. I am working on being "less tough" or trying to do less, rest more. It's just it already seems that I do a ridiculously small amount. I always appreciate you sharing your experiences. It helps.

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  4. Hi Upnorth --- I understand and know so well about the self-blame talk and thoughts. I agree with Yun Yi though -- I think we are the toughest of people. It always amazes me how many complain when they get a case of the flu --- how terrible it is, how horrible they feel and about having to spend three days in bed. If they feel that is terrible, I'm not sure how they would handle what we do day after day, month after month, for years on end.

    Hope you enjoy your time with your parents.

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    1. At home on the rock.....yes, I almost want to laugh when people get the flu (then I remember that for them it feels bad)....it's probably best that they don't truly know what we endure everyday. Don't you think it would break their hearts?

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  5. Thinking of you. If there was a magic wand to be found I would send it your way.

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    1. Thanks Heather....I'll keep my eyes open for that wand :)

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