I continue to be improved. I would say maybe 5% overall, perhaps a little more. The main improvement is with both energy and sustainability. What I mean by sustainability, is I can do more without crashing, and my crashes are shorter. While in the disability scale 5% is not a lot, it is enough that I'm not complaining...honestly, I'll take it!
I also notice a burden being lifted mentally and emotionally. With a little ease-up in the sick realm, I am also coping better with life in general.
Why am I improved? Honestly, I am hesitant to say it, but I think it must be in part a result of the high dose B12. I have been giving myself B12 shots now for maybe a month or just a little more and the improvement coincided almost exactly with the start of the B12 (beginning a week or so after).
I also speculate, and I may be grasping at straws here, the increased Vitamin D and sunlight. From the start of the spring I have been spending more time outside. Sometimes just in my chair, but also short walks around the gardens or even sitting and weeding.
So while I have cancelled 3 trips to my old stomping grounds in the last 2 years due to health, I finally bit the bullet and came!!! My old stomping grounds is where I lived and worked the 6 years in Minnesota prior to getting the Mono and subsequent M.E./CFS. I was a wilderness guide here, also working a little at the local college teaching physical education (outdoor) classes.
Because I live between three and four hours away, and many of my friends were here, I used to get back a few times a year. Then I started getting worse. I have had trouble making the trip even as a passenger. As well, many of my friends that lived here have moved on.
Last week, my friend N came up to visit. It had been two years since we'd seen each other in person. On a bit of a whim, I took the risk to come home with her. The journey was tough (just a ride in the car, maybe 4 hrs). I was in tears by the end. But after a day and 1/2 resting, I popped back up to my status quo. And now she is out in the woods so I've mostly just been doing what I do at home - resting in bed.
Resting....except instead of traffic, neighbour dogs barking, roommate noise, I hear the wind through the aspen and the birds. It is so peaceful.
I have pushed a little too hard, though....I get here and people want to see me. And they just don't understand chronic illness from inside a "well" body. I think it's just too far from reality. They don't realize that for me, just sitting up for more than a short period comes with consequences (and because it hits a day or so later they don't get the joy of seeing the consequences).
Still, I'm glad I came, and I'm preparing mentally in case I have a crash from the trip...but I'm also crossing my fingers that the crash is non-existent, or at least short. I'm hoping this improvement in resilience continues.
I'm posting a few photos - me and N's dog, a nearby lake (there are lakes everywhere here), a frog I saw, and the road where I'm staying.....
This is WONDERFUL news!!!! I am so happy for you! I am rather partical to Minnesota myself :) having lived many years there. I always say you can take the girl of out Minnesota but you cannot take Minnesota out of the girl! So excited for you upnorth. Enjoy the quiet, the renewing of friendships and the better days. Love the picture of the road...and seeing you smiling outside!
ReplyDeleteThanks Renee,
ReplyDeleteLooking at the photo, you would never know I'm sick, would you? No wonder people have trouble with that, sigh. I'm so glad both of us are seeing improvements. I really think we both deserve it :)
upnorth you look great in photo! don't look sick at all. glad you made progress and hope it continues.
ReplyDeletejust found your blog...i think i "joined" incorrectly - despite having my own blog on blogger i still find some settings that don't work right...so now it looks like i'm a "member" and "follower" - and for some reason my photo doesn't appear! ugh! so feel free to change that member/follower thing..my blog is chronicfatiguechronichope - so i immediately appreciated your beautiful Emily Dickinson quote - thanks for that I hadn't read it before - wishing you continual 5% improvements!
ReplyDeleteUpnorth! I'm so excited that you are seeing improvement and stability! that is such great news! You look fantastic! I have added b-12 and I have noticed I feel better with it as well! I so hope that this improvement continues to continue and that you do not crash! Woo Hoo! I'm so excited!
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