Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Sunday, February 19, 2012

Hypochondriac

If it's not one thing lately, it's another. From the outside, I must sound like a complete hypochondriac.
I've been pretty badly crashed again this whole week so I have all my typical flu-like M.E. symptoms (sore throat, painful lymphs, breathing ache, severe fatigue, weakness, tremors).

I'm also dealing with bouts of dizziness that aren't OI. It's a balance thing. I went to a talk on Friday at the U (against my better judgement because the M.E.'s been so bad) and the whole first hour couldn't focus because I felt off kilter (balance) and as if I was looking through a haze. I've also been feeling as if my brain is swollen (not painful, just pressure).

I finally went to a walk-in clinic Saturday and was diagnosed with vertigo. Evidently, to have vertigo, you don't need things around to seem like they're constantly spinning. It can come in bouts like I've been experiencing, and express itself as feeling off-balance. According the the Dr., the minor ear pain I've had the last five days is due to my eustachian tubes being inflamed, (swollen) but not infected. He also saw that the pressure in my ears wasn't equalizing.

He said bouts of vertigo typically last 10 days to 2 weeks. I've had this type of dizziness many times since M.E. (2 or 3 times a year). I've tried to get it treated only twice. I have a prescription for Serc, however, he said gravol is almost as effective.

I'm also dealing with another bout of stomach upset. I seem to get this every couple months. It sometimes goes on for weeks (or more) at a time (occasionally vomiting, usually diarrhoea). I've been on a waiting list to see a gastro for over a year. I'm not too hopeful they'll find anything, but if I'm lucky, perhaps. On the positive side, the chronic intestinal issues make it so I don't gain too much weight laying around all day. I have a spell of serious stomach/intestinal stuff, loose a bunch of weight and by the time I'm feeling better and gain it back I have another round. (How is that for glass half-full? Not the preferred method of weight loss, but).

So I'm feeling as if it's not one thing it's another. Isn't the M.E. bad enough without constantly being hit with all this other stuff?

I finally have an appointment scheduled to talk with my specialist. It's through tele health (like video conferencing) so we'll see how it goes. Top of my list is OI. I managed to partially faint in the kitchen Thurs. night but luckily didn't injure myself.

10 comments:

  1. Hi Upnorth -- Sorry you are having to deal with so many other things on top of the ME. I also found with ME all my other body systems were affected in some way. Everything seemed to shut down or alter in some way.

    I hope you're able to get some answers and some relief from all of this.

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    1. Thanks At Home on the Rock, I'm sure this too will pass and I'll just be left with the M.E. again (not a huge comfort)....I'm sure whatever this illness is, you're right, it messes with all kinds of systems.

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  2. Hey.

    Lovely, isn't it? I'm actually weathering a bout with vestibular neuritis right now as well. It started yesterday, but I have had it three other times over the last few years. I take Meclizine, but it makes me really tired and gives me wicked dry mouth. So far I've been dealing with it sans drugs. It's common for people with autoimmune issues, as well as those with POTS. Funny that we both have it at the same time. I blogged about it some time ago. http://jenjiworld.blogspot.com/2009/01/residence.html

    If you have inflammation in your ear it's likely due to a viral issue. Some people claim it's a shingles like episode except of the inner ear and vestibular nerve. Usually my bouts last about a week and may be intermittent for a while and then go away completely. Hang in there. I haven't had this in about 2 years, so be encouraged. I also never, ever let water get in my ear and accidentally did this past week, so that may be the culprit that set things off. Ever since I first had VN, I started using cotton in my ears for showering/bathing and I never had another outbreak until now. Also, my Mother has had bouts with it as well, so there's another argument for it being a viral issue, especially this time of year. I've never had it during the Summer.

    By the way, my cardiologist is sending me to the POTS guru in Ohio. He said this guy wrote the book, literally, he's cited in all textbooks and articles regarding POTS/OI and autonomic dysfunction. I'm calling tomorrow, but he's usually backed up 7-8 months, but it'll be worth the wait. A little bit of travel, about 5 1/2 hours, but still worth it. I'll catch up with you on Skype.

    Take it easy. Vertigo is nothing to mess with. Are your eyes doing that whacky tracking thing? I hate that. It feels disgusting and is really disarming.

    Really rest. Like far more than usual. And don't make any sudden moves.

    jenji

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    1. hmmm, I wonder if that's what I have too Jenji, vetibular neuritis. Like I mentioned, I get bouts of this a 2 or 3 times a year?? But this is first with the ear pain ....it's not severe, just occasional pangs which made me wonder if it was viral related this time? Weird that we both got it the same time. Now that you point it out, I think I mostly get it in the winter months too. Hey, congrats on the POTS/OI specialist, I hope that's where I'm headed too (not necessarily the same one, but perhaps an equivalent here in Canada?)

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  3. Sorry you are having vertigo upnorth. It seems hard to move ahead doesn't it. Thanks for coming by my blog. I have been very ill for the past 11 days and struggling emotionally and spirtually too. No energy to write or desire to right now. Sending hugs and many thanks for your concern. It was soothing to my soul to read your comment...

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  4. No, it doesn't sound like you are a hypochondriac, it sounds as though you are an ME sufferer with a lot of complicating symptoms! I hope you can find something to help wit the various problems.

    Take care,
    D.

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    1. Thanks for the vote of confidence, D, I just feel lately that if it's not one thing, it's another....almost hard to believe myself.

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  5. Hi, sorry to intrude your blog, but I need to let you know about this petition that has been started yesterday aimed at the canadian health minister- take a look and sign if you deem appropriate. Feel free to pass it on too!! http://www.change.org/petitions/minister-of-health-of-canada-fund-research-for-patients-with-myalgic-encephalomyelitis
    Thank you, Kati

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    1. Thanks for the info, I'll add it to my next post as well incase there are any Canadians who read this.

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  6. Sorry you're going through all this! Have you thought about trying to go gluten-free? Your intestinal issues sound like you might be gluten intolerant (even if mildly). But what do I know, though heck it might be worth a try if you haven't tried it before!

    Hope you feel a bit better soon!

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