Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Wednesday, November 1, 2017

Watch Unrest.


My life is busy.  Too busy.

Lately, I often feel overwhelmed. I'm happy for my work (the online course), I'm happy that I have my father in my life, but I'm also sick with a disabling chronic illness. I wish there was a happy medium.

I'm doing too much to the point where I collapse in mental and physical fatigue almost daily. (That said, I haven't relapsed). But given how much I've stressed and stretched myself this past 12 months, I decided not to take on any work this winter, so there is a light at the end of the tunnel. I just need to power-through and try to enjoy the next 6 weeks of 'busy' as best I can.

Then it's back to more rest/time but also the accompanying poverty that goes with it, not to mention the issues with low self esteem that plague me when I'm not working.

But I'll get to the point. I'm writing this post for a reason. I watched the documentary UNREST.  If you haven't watched it, watch it.

If you are a non M.E. friend, I think you will see pieces of my story in there.  The time early on where I was so sick, dizzy, weak and exhausted you watched me lay down in a dog bed at our friend's party.  The time you had to help me walk because my legs gave out after I thought I was well enough to go for a walk/hike.  The times early on where I had to crawl to the bathroom (although I don't think anyone saw me those times), or where I couldn't make it up a set of stairs.

The movie's not completely overwhelming, I thought it would be; it wasn't.  It's about M.E. but it's also art. It's a story that needs to be told and it's told well. There are small moments of beauty in it.  There are even a few moments of humour.

On the other hand, it's not a "light" watch.  It's about the lives of people who suffer severe illness and yet have been mostly dismissed by doctors and society. I cried.

I felt jealous at times of the support Brea obviously has (both personal and medical). But then I guess she wouldn't have been able to make the movie had she not had this support.

I'm going to buy a bunch of DVDs and give them to friends...  It's such an important story and it's done so well.

Have you seen it? What did you think?

2 comments:

  1. i gave to the kickstarter campaign and so received a link to watch the movie. it was incredibly well done and i agree about the moments of beauty and humor. as a non-ME sufferer, i found the visual impact of the movie most moving. i can logically comprehend and maybe even imagine what ME looks like, but honestly SEEING it was a big breakthrough for me. it added a dimension to my understanding that i couldn't have gotten any other way. i want EVERYONE to see it. thank you for continuing to share, gail.

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    1. Thanks for watching it Jen., I hope I get to watch it again with someone. There's lots to debrief in it. They've been doing screenings mostly in the U.S. and Britain with Q&A following but the chances of them coming here?? laughable.

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