Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Wednesday, July 12, 2017

Nothing's New

I haven''t written lately because I don't have much to say. Has this blog reached it's inevitable end? Is there a reason to keep posting?

I am not working, my contract is over, and the stress related to that is gone.  It is so great to have a break!

Mostly my life lately revolves around entertaining and helping my dad. He isn't supposed to be driving at present so he is here everyday.  He seems depressed and bored so I do my best, but I have a chronic illness and could use a break from him sometimes.  It just never ends; I have an inkling of what it means to have kids (no, I realize it's not the exact same), but being someone's main caregiver etc. is a constant job, it is never over...

Otherwise, I'm doing.....well nothing. Watching movies, Netflix, a little gardening.  I am trying to set up some help with fixing a section of leaky house foundation, but in the role of facilitator.  And on the positive, the project means I have a friend coming to visit from the states which is AWESOME and exciting.

Health-wise I'm up and down.  I do too much helping my dad, then crash, wish it were all over I'm so sick.  Then as soon as I feel a bit better, I do it all over again. Sigh.

With the summer heat the POTS is horrific.  I did some light gardening the other day (sitting on the ground weeding). I was dizzy for most of the session, came indoors and took my BP and HR and I was HR- 146!! sitting down gardening.

Speaking of POTS it's been 2 months since my tilt test and the specialist hasn't sent any results at all.  Attempting to get medical support for these conditions/diseases is a complete waste of time in my experience.

2 comments:

  1. Your dad is lucky to have you, but I wish there was a way for you to get a break. When my gram was getting on, the family got a college student to come by 2-3 times a week to take her on an 'outing' just to give my aunt a break. Shopping, park, friends house, whatever - just out of the house for a few hours. Maybe that is something that could work? TC

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    1. We are working on getting him into a day program once a week, if he really enjoys it maybe 2x?? I was also thinking of someone who can take him on errands/outings once a week like you say if he looses his licence (likely). It has to be someone he's comfortable with...and if I get more part-time work I just can't spend this much time with him.

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