Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Monday, May 16, 2011

update - more OI

So after a 12 day MAJOR crash I'm feeling a tad better the last two days. Since I've had such a terrible Winter and Spring, it's almost like it wasn't a crash, more of a long, seemingly endless flu.

I think partly my system is just so run down from the disease right now, that I'm crashing much more easily. Yesterday and today I was able to sit outside a bit and pull a few weeds in the gardens. Yay!

This is the time of year where I tend to pick up. I'm hoping this is it, and that I climb back up to where I was last fall - which is mild moderate M.E. (a couple hours work at home most days with a few outings a week under 2 hours) instead of mild severe (housebound and laying down most the day).

I saw my NP today and we discussed the dizziness and possible OI (Orthostatic Intollerance). She checked me in the office (sitting and standing) and there was only a 2 or 3 point drop.

However, I'm still pretty sure the black-outs are OI as I've had OI symptoms since the first year of M.E. They get worse when I'm crashed which I have been.

Now I have to see a Dr. this week (at my clinic) which I'm not looking forward to. Anyone have any good literature on OI and M.E. from a reputable source?
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4 comments:

  1. jenjiMay 16, 2011 at 4:49 PM

    Of particular interest is the delayed mechanism of people with ME/CFIDS and OI. I shouldn't expect you would see a drop in your blood pressure unless the doctor waited 5-10 minutes before taking your pressure again.

    Anyway, here are some abstracts, particularly the delayed component of OI with our issue. Tilt table is the route. Probably a cardiologist is best.

    http://www.oiresource.com/estudy.htm#Delayed

    The entire site has some good resources if you're looking to bring in study data.

    Good luck.

    jenji

    ReplyDelete
  2. upnorthMay 17, 2011 at 7:41 AM

    Thanks Jenji,
    this is helpful.....I'll go check it out.

    ReplyDelete
  3. ReneeMay 17, 2011 at 10:05 AM

    You will be in my thoughts and prayers for this appointment. Hope you get the help you need with this and that your season of struggle is over now.

    ReplyDelete
  4. AnonymousJune 1, 2011 at 3:29 AM

    www.dinet.org - POTS Place - think i gave you this before, I give it to everyone! It has list of Specialists, not sure if any in Canada, but have a look.

    ReplyDelete

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