Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Friday, July 16, 2010

Trying something new.....

I'm exhausted from my trip/visit south. I overdid it (of course). Not sure how long it will take to recover, but I spent most of today in bed (where I am now). I hope if I dedicate the weekend to resting I can start doing some editing type work at home by Monday.

I have some interesting things to report, including a good visit to my specialist - which was much needed. She really is wonderful. I wish I could have had two hours with her, but still she gave me more than 30min instead of the scheduled 20min appointment so I can't complain.

I may try some Famciclovir which in the U.S. is Famvir. It's an antiviral. Has anyone who reads this blog ever tried it for viral/immune symptoms related to M.E./CFS? I did a 3 month round of low dose Valtrex once and didn't notice much difference. We both thought this might be worth a try given my inability to rid myself of what she thinks in an ongoing (eight year long) low-grade viral infection.

Can I just say that this a ridiculously hard illness to understand on so many levels? On that note, I've also just signed consent to have my blood and DNA contributed to the CFIDS BioBank in the U.S. (Canadians are invited to participate which is nice). The samples are "banked" and researchers can use them reducing the time and money researchers put into participant recruitment.

I'll blog again soon, once I've rested up.

5 comments:

  1. Hmmmm I haven't tried any anti virals but I am very curious. If you do end up taking them please let us know if it's helping!!

    Cheers :)

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  2. It's difficult to get treated with antivirals for CFS in the UK. You have to jump through hoops! I'll be interested in your progress too. Sounds like a fruitful trip.

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  3. My specialist seemed to think it had helped some with M.E.ers like me. I think I'll start Monday...I'll let you both know how it goes. I'm in a crash so it will be hard to tell if it's the antiviral or rest at first.

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  4. Haven't tried antivirals yet either; doc said I'm "not ready" for them yet. Guess he's waiting until I'm better than I am now before he starts them. But yes, I'm curious to hear how it works as well!

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  5. I, too, will be interested in knowing how you respond.

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