Thought for the Day:

Hope is the thing with feathers
That perches in the soul.
And sings the tune
Without the words,
and never stops at all.

- Emily Dickinson

Sunday, November 1, 2009

Specialist Appointment

I visited my specialist Dr. Bested in Toronto.
For the first time I did the trip as an overnight. I flew down, took public transport to the appointment, spent the night in a hotel, then flew back the next morning.

Unfortunately the plane couldn't land in Thunder Bay due to low clouds so we went on to Winnipeg where I spent about 3 hours waiting. Finally we flew back to T-bay and managed to land OK.
It was a VERY exhausting trip. I tried resting in every sitting position imaginable.

My appointment wasn't too interesting.
The blood work that was supposed to be waiting never made it.
Obviously the M.E. isn't gone, however, I'm not having a major relapse or anything and over the last year I've managed quite a bit (teaching, class etc.).
We agreed I'd continue to check-in every year.

I asked about the XMRV virus to see what she thought. She does think it will turn out to be significant at least for some patients. She doesn't want to treat anyone until she can test her patients (which makes perfect sense).

I really want to be tested and try some anti-retrovirals.
My excitement at the announcement of the virus discovery at the beginning of Oct. has waned. Now I'm just guardedly hopeful that the study will be replicated soon. In the meantime I'll just manage to do as much as I can without any major crashes.

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