I haven't written a post in forever. While I won't remove the blog, I do think I may stop posting. Thanks to all who followed me and supported me over the years.
We are coming up to December which is a tough tough month for me. I lost my mom in Dec. 2015 and my dad just two years ago in December 2019, right before covid. Years ago my sister died in December.
ME/CFS and POTS wise my health has improved over the last 5-10 years in tiny increments. I now work part time on and off during the year teaching online. I still have to be careful not to over-do, I still crash fairly often. Some symptoms are worse than they used to be (shortness of breath) but most have improved overtime. I also now have a diagnosis of chronic neutropenia that the specialist I saw for a while thinks has to do with when I'm flared with post-viral stuff....yes even almost 20 years later.
I feel deeply for all those going through long-Covid. I've lived the the same thing. Being so sick from a virus and going weeks, then months, then years, now decades with little help or support. Having my illness dismissed by pretty much everyone. Suffering alone. My advice if you are new to this, is find others with the same or similar illness, and create friends and community. Without my close M.E. friends who actually 'get it', I doubt I'd still be here.
Anyways, perhaps I'll write here again someday, if not, I wish you all the best.
For those who've followed this blog over the years, you know how much I love being out on the land, in wilder places. I've managed this a handful of times, yes, even with M.E. Canoe tripping means I don't have to walk much, and am not upright when I'm travelling. If I'm travelling I just stop when I feel too tired/weak/sick. I also spend most my time out, at camp, sitting or laying down. That said, I know I am super lucky to be able to manage it.
This autumn I didn't work part time, so I was able to spend almost 4 weeks between the end of August and the end of October out on the land! Honestly, I want to be back out even though it's tough and 10x tougher when you do it while ill. Here are a couple photos.
